Survey finds many U.S. parents of disabled children have made no long-term care plans
Fewer than half of parents of children with intellectual and developmental disabilities make long-term plans about who will take over their child’s care if the parent or other relative providing care dies or becomes incapacitated, a study of the University of Illinois (UI) said.More than 380 parents, primarily mothers of individuals with disabilities participated in a web-based national survey about planning for their children’s care. The parents who responded to the survey ranged in age from 40 to 83, and their offspring with disabilities were aged 3 to 68. Participating parents were asked whether they had completed 11 items related to planning for their child’s long-term needs, such as identifying a successor to the current family caregiver, researching residential programs or establishing a special-needs trust. More than 12 percent of the parents reported that they had taken none of these actions to ensure that their child’s needs would be met if the parent or other caregiver died or was otherwise unable to continue assisting the adult or minor child with disabilities. Adults with intellectual or developmental disabilities are significantly more likely to be placed in institutional settings if care plans are not in place when the parent providing care dies or becomes too old or too ill to continue, said the study’s lead author Meghan Burke, a UI professor of special education.
Long Reher Hanson & Price specializes in planning for the future care of children with disabilities. Contact us to find out how the firm can assist you in providing for your child’s future financial and long term care needs.